2012-04-26 / Local & State

Fundraiser Scheduled To Benefit GSD Research

Two children in county affected by glycogen storage disease
By Chanin Rotz-Mountz

Jacob Hershey Jacob Hershey When Jacob Hershey was preparing to enter kindergarten at Mc- Connellsburg Elementary, he began suffering some une xpected medical issues. Three years and one liver biopsy later, Jacob’s parents, Todd and Yolanda Hershey of Mc- Connellsburg, received the startling diagnosis that their son suffered from glycogen storage disease.

GSD Type IA reportedly affects one out of every 100,000 children. Here in Fulton County, Jacob, now 10 years of age, and 15-year-old Big Cove Tannery resident Tessa Peck have been diagnosed with the disease that will result in lifelong management in the event a cure is not found.

According to Mark and Melinda Peck, the disease requires their daughter, Tessa, to adhere to a very strict dietary regime. Tessa, as well as Jacob, is restricted from eating dairy products, fruit or anything containing sugar. Those specific sugars, if consumed, build up in the liver, putting the children at constant risk for hypoglycemia, seizures, renal disease and growth failure.

Tessa Peck Tessa Peck “Our children must be fed every one to four hours around the clock. This means they can never sleep through the night or leave the house without medical supplies and snacks. The children must eat, sleep and plan all activities by the clock – it could be catastrophic if a meal or feeding is missed or late even by a few minutes,” said the Hersheys and Pecks in a letter to friends, business and community members.

In their letter, the families announced they have joined forces to raise money to offset research costs associated with GSD. A special basket bingo will be held Sunday, May 20, at the Mc- Connellsburg Alumni Building, with all proceeds earmarked for The Children’s Fund for Glycogen Storage Disease Research. The Children’s Fund is a 501c3 nonprofit foundation dedicated to providing researchers with funds to support their ongoing work.

Doors will open at 12:30 p.m., and bingo will get under way at 2 p.m. Tickets are available in advance or at the door. Cost is $20 per person, and the event will also feature raffles, baked

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